About Osteogenesis Imperfecta (OI)

About OI Condition

Welcome to our blog.

To begin, I would recommend that everyone learn more about the condition and attend oi conferences, as this will give you a better understanding of what lies ahead and how to handle your children.

How Is Brittle Bone Disease Diagnosed?
Your doctor can diagnose brittle bone disease by taking X-rays. X-rays allow your doctor to see current and past broken bones. They also make it easier to see defects in the bones. Lab tests may be used to analyze the structure of your child’s collagen. In some cases, your doctor may want to do a skin punch biopsy. During this biopsy, the doctor will use a sharp, hollow tube to remove a small sample of your tissue.

Genetic testing can be done to trace the source of any defective genes.

How Is Brittle Bone Disease Treated?
There’s no cure for brittle bone disease. However, there are supportive therapies that help reduce your child’s risk of broken bones and increase their quality of life. Treatments for brittle bone disease include:

physical and occupational therapy to increase your child’s mobility and muscle strength
bisphosphonate medications to strengthen your child’s bones
medicine to reduce any pain
low-impact exercise to help build bone
surgery to place rods in your child’s bones
reconstructive surgery to correct bone deformities
mental health counseling to help treat issues with body image.

What Are the Symptoms of Brittle Bone Disease?
The symptoms of brittle bone disease differ according to the type of the disease. Everyone with brittle bone disease has fragile bones, but the severity varies from person to person. Brittle bone disease has one or more of the following symptoms:

bone deformities
multiple broken bones
loose joints
weak teeth
blue sclera, or a bluish color in the white of the eye
bowed legs and arms
kyphosis, or an abnormal outward curve of the upper spine
scoliosis, or an abnormal lateral curve of the spine
early hearing loss
respiratory problems
heart defects.

We know living with this type of condition can be overwhelming, which is why the foundation (OIFN) is always ready to support people living with this condition.

If you would like to support our work, kindly click on the link below,

https://oifn.org/donate-to-oif-network

Or

through our GoFundMe page
https://gofund.me/410a513c

You Can also donate in Naira by paying directly into our naira account

OIF Nigeria
United Bank For Africa. UBA
1020417315

Our children might be fragile, but they are also special and human and must be treated as such.

Thank you in advance for your support and donations

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